#brain fog - Shift.ms

@nkinley

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I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

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5

@paddymac999

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Brain fog

Can any you guys explain to me what brain fog is because I think i have it and if so what is the best thing to take to help me with it 🙏

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4

@Johnbradley

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Are these symptoms (fatigue, numbness, tingling, vision changes, pain, brain fog) related to MS?

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13

@bigdill306

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Hey everyone 👋 I’m Dylan, a 38-year-old guy living with MS out here in Saskatchewan. I run a legal weed dispensary (yes, I’m that guy), and I use dark humor, sarcasm, and a whole lot of cannabis to get through the weirdness that is life with MS.I figured it was time to find a space with people who get it the fatigue, the brain fog, the “oh cool, my leg’s just doing its own thing now” moments. I’m just here to connect, share some laughs (the darker the better), and not feel like I’m the only one in the snow belt dealing with this.If you're in or around Saskatchewanor even if you're not say hi. I don’t bite. Unless it's a bad MS day and my jaw spasms. (Kidding. Mostly.)Looking forward to getting to know some fellow weirdos on this ride

Saskatoon, Canada

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55

@Plumbduff

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I've just received a letter saying I've been selected for Jury Service, but with the brain fog,fatigue,lack of concentration and other problems (ie frequently needing the loo and walking issues)l just can't do it,my anxiety is really bad and I don't know what to do,has anyone got any help or advice? Thanks

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10

@Britt2bys

Losing Focus extreme Brain Fog

I feel like I can’t focus at all to the point where I’m leaving my own house and phone on silent even though I know I cant keep it like that all day. 🤦🏾‍♀️

Hampton, United States

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@FarahN

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What's the silliest thing your brain fog had you doing?

I had an event that I was really excited for. As I'm on my way there, I re-read the email. Turns out it was next month 😂

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11

@paddymac999

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I feel very heavy headed. Im not sure if its brain fog. I was diagnosed with PPMS about two years ago and im still trying to find stuff out. Anyway for the last couple weeks I feel heavy headed and find it hard to concentrate and want to lie down all the time. Does anyone else ever feel like this and will it pass or is it going to be permanent

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3

@paddymac999

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Hi, is there anything that you can take to help with brain fog

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6

@NeuroPulse

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LET’S kick it! 🧠 “MS brain fog made me forget… what was the funniest thing you forgot because of it?”

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8

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